News

Advance Care Planning 101: Determining Your Health Care Proxy In a time of medical uncertainty, like being under anesthesia during surgery, who do you want to speak on your behalf? It’s an important question to consider as part of the advance care planning process. Last month, an NBTS blog post covered what advance care planning is and why advance directives are important. Determining your […] April 13, 2023

Caring for the Caregiver: 9 Ways You Can Support a Care Partner of a Patient with a Brain Tumor An estimated 700,000 Americans are living with a primary brain tumor in 2022. For each patient with a brain tumor, at least one loved one may provide support as a care partner. Unpaid caregivers have a plethora of responsibilities to help care for a family member or friend throughout their brain tumor experience, in addition […] November 23, 2022

Guest Blog: Training for a Marathon Brought Me Back After My Son’s Brain Tumor Diagnosis Earlier this year, I joined a team of 50 Gray Nation Endurance®️ athletes training to run in the 2022 NYC Marathon to raise critical funds for the National Brain Tumor Society. Training for the marathon was just what I needed to survive as a caregiver. It’s surreal to look back at the past year and […] November 18, 2022

In Sickness and In Health: Becoming Julio’s Caregiver Julio and Liz P. ventured to Turks & Caicos earlier this year to celebrate a couple of friends turning 40. Julio, who has anaplastic ependymoma, suffered a focal seizure while snorkeling. While swimming in the crystal clear turquoise water just offshore, he experienced an aura that indicated he was about to have a seizure. He […] November 10, 2022