Patient Defends Dissertation with Unwavering Resilience After Brain Tumor Diagnosis Christina E. entered the lobby of the 2022 San Diego Comic-Con to reunite with friends for the seventh time in nine years. A lot had changed since she’d last attended the largest annual comic and pop culture convention in the world in 2019: a pandemic, for one, a career change, and her ability to speak […] March 22, 2023
New Approval of Treatment for Young Children with Certain Brain Cancers On March 16, 2023, the U.S. Food and Drug Administration approved a new treatment combination that will now be available as an option for pediatric patients 1 year of age and older with low-grade glioma (LGG, grade 1 or 2) that have a mutation called BRAF V600E. This marks the first FDA approval of a […] March 21, 2023
Managing Scanxiety: 5 Ways to Reduce Scan-related Anxiety Through Self-Care In addition to implementing tips shared in an NBTS blog post last month, taking care of the mind and body can help foster strength and resilience to face scanxiety. Treating yourself with tenderness and compassion while managing your energy can make a positive difference. Self-care can look like eating a nutrient-dense diet, getting plenty of […] February 7, 2023
New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023
[White Paper] Assessing Uptake of Remote Consent for Clinical Trials: Opportunities to Reduce Patient Burden A white paper from the National Brain Tumor Society and the LUNGevity Foundation Executive Summary While the COVID-19 public health emergency has caused major disruption to many clinical studies, one positive outgrowth has been the opportunity afforded trials sponsors, investigators, and regulators to implement elements of decentralized trials in on-going clinical studies. Decentralized clinical trials […] January 18, 2023