News

Government Shutdown: What Patients with Brain Tumors & Care Partners Need to Know Update (9/30/23): Congress passed a short-term Continuing Resolution (CR), which will keep the government operating at Fiscal Year 2023 funding levels until mid-November buying more time to come to an agreement on a full FY 2024 budget. While a CR is preferable to a shutdown, the brain tumor community needs increases to research funding as […] September 26, 2023

Brain Tumor Diagnosis Spurs Nomadic Lifestyle A brain tumor diagnosis in 2014 quickly grounded Dace H.’s fast-paced job at a technology start-up. The life change pushed Dace to slow down and focus on the things that mean the most to him — spending time with friends and family, being in nature, and exploring his creativity through writing and photography. From there, he […] May 16, 2023

World Class Hospitals Join DNA Damage Response Consortium to Bring Forward New Treatments for Adults and Children with Brain Cancer Researchers from St. Jude Children’s Research Hospital, NYU, UCSF, and the University of Minnesota join National Brain Tumor Society and Yale-led Initiative   Today, the National Brain Tumor Society (NBTS), in partnership with Yale Cancer Center, announced new partners for its DNA Damage Response Consortium. Joining the initiative are world-class experts in adult and pediatric neuro-oncology […] March 28, 2023

Managing Scanxiety: 5 Ways to Reduce Scan-related Anxiety Through Self-Care In addition to implementing tips shared in an NBTS blog post last month, taking care of the mind and body can help foster strength and resilience to face scanxiety. Treating yourself with tenderness and compassion while managing your energy can make a positive difference. Self-care can look like eating a nutrient-dense diet, getting plenty of […] February 7, 2023

[White Paper] Assessing Uptake of Remote Consent for Clinical Trials: Opportunities to Reduce Patient Burden A white paper from the National Brain Tumor Society and the LUNGevity Foundation Executive Summary While the COVID-19 public health emergency has caused major disruption to many clinical studies, one positive outgrowth has been the opportunity afforded trials sponsors, investigators, and regulators to implement elements of decentralized trials in on-going clinical studies. Decentralized clinical trials […] January 18, 2023