Advocacy in Action: Updates on the Childhood Cancer STAR Act and Childhood Cancer Data Initiative The Childhood Cancer STAR Act and Childhood Cancer Data Initiative (CCDI) are major federal government-led initiatives that exist in part because of years of advocacy work by members of the brain tumor and childhood cancer communities. As we reflect back on Childhood Cancer Awareness Month (CCAM) this past September, we want to share updates on […] October 8, 2021
Innovating Brain Tumor Clinical Trials: Lessons Learned During the COVID-19 Experience The global COVID-19 pandemic disrupted nearly every facet of life in 2020, and brain cancer research, particularly clinical trials, was not spared from its impacts. As is often the case, though, with disruption comes the opportunity to innovate. Convening key stakeholders across the brain tumor community, the National Brain Tumor Society (NBTS) has taken stock […] May 7, 2021
National Brain Tumor Society Congratulates President-elect Joe Biden National Brain Tumor Society (NBTS) offers our congratulations to President-elect Joe Biden and Vice President-elect Kamala Harris. President-elect Biden, more so than any other president in U.S. history, personally understands the devastating nature of brain tumors following the loss of his son, Beau, to glioblastoma. He and his wife, Dr. Jill Biden, care deeply about […] November 10, 2020
Sights & Sounds: Glioblastoma Awareness Day (#GBMDay) 2020 Perhaps Dr. Ned Sharpless, Director of the National Cancer Institute, summed up Glioblastoma (GBM) Awareness Day 2020 best when he said during NBTS’s Defeating GBM: A Virtual Town Hall event, “Events like this are really important to re-energize the community so we can join together and make progress in a disease that where progress has been […] July 23, 2020
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020