News

How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet approximately 5,900 families will receive the news in 2022 alone.  This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did you […] September 16, 2022

New Treatment Approved for Certain Glioma Patients On June 22, 2022, the U.S. Food and Drug Administration (FDA) granted accelerated approval to a new treatment combination that will now be available as an option for certain brain tumor patients. The FDA approved the combination of two oral drugs called dabrafenib (brand name: Tafinlar) and trametinib (brand name: Mekinist) for the treatment of advanced tumors […] June 28, 2022

National Brain Tumor Society Statement on New Biden-Harris Cancer Moonshot Goals National Brain Tumor Society (NBTS), a leader in brain tumor patient advocacy, research, information, and support, was honored to represent the millions of Americans impacted by brain tumors every year at a White House event to reignite the Cancer Moonshot.  The following is a statement from NBTS chief executive officer, David Arons, on today’s announcement. […] February 2, 2022

Advocacy in Action: Updates on the Childhood Cancer STAR Act and Childhood Cancer Data Initiative The Childhood Cancer STAR Act and Childhood Cancer Data Initiative (CCDI) are major federal government-led initiatives that exist in part because of years of advocacy work by members of the brain tumor and childhood cancer communities. As we reflect back on Childhood Cancer Awareness Month (CCAM) this past September, we want to share updates on […] October 8, 2021

NBTS Brain Tumor Clinical Trials Report: Q1 2021 It can be hard to keep track of new clinical trial opportunities opening across the United States, especially during the current public health crisis created by the coronavirus (COVID-19). However, there are many clinical trials still actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for […] April 8, 2021