News

Sights & Sounds of Head to the Hill 2020 More than 1,300 brain tumor advocates flooded Congress with 4,567 messages asking for increased funding for brain tumor research National Brain Tumor Society’s Head to the Hill is the brain tumor community’s signature annual advocacy event. Normally, we unite with hundreds of volunteer brain tumor advocates — consisting of patients, survivors, caregivers, family, friends, clinicians, […] May 6, 2020

From the CEOs Desk: Spring 2020 Update and Plans Dear NBTS Community, Shortly after reports of coronavirus outbreaks emerged across the country in early March, NBTS provided an update to our community detailing plans to move all of our activities and events scheduled through June 2020 to virtual platforms. While we were saddened by the thought of not being able to connect — a […] April 24, 2020

Announcing the Ependymoma Fund for Research & Education Dear Friend of the Brain Tumor Community, We write to share with you that the Collaborative Ependymoma Research Network (CERN) Foundation and the National Brain Tumor Society (NBTS) have entered into a formal collaborative effort to raise financial support for ependymoma research and education. Statistically rare, ependymomas occur in both adults and children and, unfortunately, […] December 17, 2019

Celebrate the Victories, No Matter How Small The brain tumor charity, StacheStrong, announced through their Instagram account that they had signed a partnership with the National Brain Tumor Society (NBTS) to contribute toward a total $500,000 award to help support the GBM AGILE Adaptive Clinical Trial. “I almost wasn’t going to post the announcement to Instagram,” Colin Gerner, the founder of StacheStrong, […] May 17, 2019

Guest Blog: My Son Has Brain Cancer My son has brain cancer. And while the rest of the world sees a kind, smart, always-smiling, makes-you-laugh-so-hard-wine-shoots-out-of-your-nose 30-year-old man, I see something else. I see the baby who smelled like warm buttered toast when he was curled up in my arms those first few months of his life. I see the toddler who carried […] May 13, 2019