Awareness Abounds: Inaugural Glioblastoma Awareness Day Moves & Inspires A week removed from the first-ever Glioblastoma Awareness Day (#GBMDay), the stories and experiences recounted last Wednesday, Jul 17, are still reverberating across the nation. As we said as the day drew to a close, the inaugural #GBMDay is a new beginning. Thanks to the brain tumor community’s fervent advocacy and action, #GBMDay became a […] July 24, 2019
#WhyNotDevin: Turning Pain into Hope for Families Christine Suau shares the story of her son, Devin, and the nine months her family spent treating his brain tumor. She talks about the rallying of a country to the cause of curing DIPG with the #whynotdevin social media campaign, the cost of care, and doing more for brain tumor research and families facing this […] September 28, 2018
Guest Blog: Team Theo – Moving On From Medulloblastoma and Paying It Forward I thought we would never face a challenge bigger than infertility. I look back now and realize how our journey to parenthood could have been a lot more difficult, but, at the time, it felt torturous. Then, we found our joy…IUI worked and we were expecting a baby boy. We had no idea what was […] September 17, 2018
Public Policy and Advocacy Updates From May 2018 Below are highlights of news and developments in the brain tumor advocacy and public policy, compiled by NBTS Research & Advocacy Manager, Kacey Troy Ribnik, and Director of Advocacy, Lainey Titus Samant: Brain Tumor Awareness Month (BTAM) 2018 was a very busy, productive, and successful month for the NBTS public policy advocacy program, all our wonderful volunteer advocates […] June 4, 2018
Glossary Blog, May 2018: Biospecimens and Biorepositories Biorepository: A facility that collects, catalogs, stores, manages, and distributes samples of biological material, such as urine, blood, tumor tissue, cells, DNA, RNA, and protein, from humans, animals, or plants for laboratory research. Biospecimen: Samples of material, such as urine, blood, tissue, cells, DNA, RNA, and protein from humans, animals, or plants. Biospecimens are stored […] May 30, 2018