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Beloved Stuffed Animal Provides Comfort to Jacob and His Family Five-year-old Jacob M. clutched his beloved Mr. Puddles — a tuxedo cat stuffed animal that traveled everywhere Jacob went — as he walked back for radiation. Mr. Puddles provided comfort to the little boy during his many appointments after he was diagnosed with diffuse intrinsic pontine glioma (DIPG). With Mr. Puddles beside him, Jacob never […] May 17, 2023

Son Advocates on Capitol Hill to Honor Mother Nearly one year after losing his mom to glioblastoma (GBM), Shawn joined his brother and father in D.C. for Head to the Hill 2019. Their experience would prove to be powerful and energizing for their grieving family. “Attending Head to the Hill our first year was all about sharing my mom’s story after she passed […] February 16, 2023

How to Support Grieving Brain Tumor Community Members While grief is a universal experience, individuals process their grief differently. This can make it challenging for loved ones to know how best to support someone who is grieving because what worked for one friend or family member may not work for another loved one.  Holly Gainsboro, the facilitator of NBTS’s Grief Support Conversations, shares […] January 19, 2023

Managing Scanxiety: 7 Tips to Help Patients with a Brain Tumor Cope with Scan-Related Anxiety As NBTS addressed in an earlier blog post about scanxiety, scanxiety is common, and most patients with a brain tumor will experience scan-related anxiety. While scanxiety can’t be avoided altogether, there are ways to manage the symptoms.  “For those living with a brain tumor, MRIs often lead to one’s diagnosis and play an integral part […] January 17, 2023

Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish.  “I got […] August 11, 2022