This website uses cookies that help the website function and that help us understand how you interact with it. Please read our privacy policy for more information.
Published on March 25, 2016 in Share Your Story
Charlie was a regular, active, 7 year old boy, who was diagnosed with DIPG 1 week before his 8th birthday. The doctors gave him 9-12 months to live. They told his parents he would not live to see his 9th birthday. Charlie underwent trial treatment to try to extend his “quality of life”. Charlie had a heart of pure gold! He touched the lives of many in a positive way. Charlie lived 17 months after his diagnosis, but experienced more in his 17 months, than most experience in a lifetime! DIPG has a 99.9% mortality rate!