Join NBTS’s campaign to raise awareness about the importance of biomarker testing and clinical trials for patients with brain tumors.
READ MOREPublished on April 26, 2017 in Press Release
The organization is asking individuals and organizations from inside and outside the brain tumor community to join our ‘Brain Tumor Team (BTeAM)’ as we seek to work together to overcome a devastating disease that inflicts nearly 700,000 Americans and millions worldwide. National Brain Tumor Society’s theme for this year’s Brain Tumor Awareness Month is, BTAM = BTeAM – focusing on the importance of teamwork and collaboration as a way to defeat brain tumors.
“Like any effective, winning team, everyone has a role that they can play or contribution they can make toward a shared goal,” said David F. Arons, JD, Chief Executive Officer, National Brain Tumor Society. “At the National Brain Tumor Society, we’re grateful and fortunate to have the dedicated support of many volunteers, partners, advocates, and donors who contribute to our mission every day. But this year, we’re seeking to rally even more to our cause and jumpstart the impact we can make through the second half of 2017 by providing opportunities for engagement and for the rest of the country to experience the strength, courage, inspiration and determination of the all-too-many men, women, and children who bravely represent the brain tumor community every day of the year. We encourage everyone to consider a way they could join our Brain Tumor Team in May, and help support those for whom participation wasn’t an option.”
Awareness, engagement, and action opportunities for BTeAM 2017, include:
Hear from NBTS leaders about all the ways you can join our BTeAM this month.
The largest annual fundraiser in the country benefiting the brain tumor community, organized in collaboration with Accelerate Brain Cancer Cure. Celebrating its 20th Anniversary this year, Race For Hope – DC has raised $29 million over the years.
The largest brain tumor-specific advocacy event in the country – nearly 300 volunteer advocates from 38 states will hold more than 200 meetings on Capitol Hill to speak with Congress about policies that will impact the brain tumor community. NBTS is also partnering with the Collaborative Ependymoma Research Network to hold the annual Ependymoma Awareness Day and butterfly release in conjunction with Head to the Hill.
Brain tumor advocates unable to attend Head to the Hill in person will receive “action alerts” for a simultaneous ‘Congressional Call-In Day’ to echo our voices on the Hill.
An advocacy campaign to encourage volunteers from the brain tumor community across the country to ask their respective governors to declare May Brain Tumor Awareness month in their state, in conjunction with the federal designation.
All May long, the supermarket chain is hosting a register roundup – simply rounding up your purchase to the nearest dollar – at 11 New Jersey and Pennsylvania locations to benefit the National Brain Tumor Society.
An online, Twitter conversation that will discuss the resources, support, information and tools brain tumor patients can take advantage of to help along their journey.
Supporters can spread awareness on Facebook with our new #BTAM frame. Supporters can update their profile picture using this link: https://www.facebook.com/profilepicframes
Hear from leading brain tumor researcher, Dr. Paul Mischel, about some of the latest developments in the fight against brain tumors.
We’ll be playing off the common colloquialism of “It’s not brain surgery,” with a theme of “It IS brain surgery,” as a way to bring awareness to those outside the brain tumor community about what actually goes into the process and what patients experience.
We’ll be sharing results from a Patient & Caregiver Survey taken during the second half of 2016 on patient participation in the research process.
New video segments and content to illustrate how our brain tumor community fights every day.
Shareable digital “infosnaps” to provide key information about brain tumors.
Finally, a host of community-based fundraising and awareness events will take place across the country, and NBTS will regularly be sharing blogs and social media posts.
These activities are all in addition to the numerous ongoing ways individuals or organizations compelled to support brain tumor research and treatment development can get involved, including:
To follow along with NBTS throughout the month individuals can use the hashtags #BTAM, #BTeAM, and #BTSM and visit http://braintumor.org/btam2017.