Now that your treatment has concluded you will most likely have very immediate questions about your next steps and the status of your impending brain tumor recovery.
Some major decisions will be weighing on you, such as your work status, over-arching health, potential lingering side effects or something as simple as driving your car to the drug store down the street.
After Treatment Key Questions:
What to Expect
- What is the likelihood that my tumor will recur? What are my options if it does?
- How often will I need MRI’s and checkups?
- Will I be able to return to work and, if so, at what point? Will I need any accommodations? Do you have any information for my employer/HR team that will help them support me at work?
- If I can’t return to work, what do I need from you to apply for long-term disability?
- Will I need to navigate long-term Social Security Disability Insurance (SSDI) and who can help me do that?
- Can I drive or will I be able to drive eventually? What do I need to do to be cleared to drive again? Can you recommend any local transportation assistance programs?
Palliative Care & Quality of Life
- Can we discuss a plan for quality of life and palliative care?
- Are there any vitamins or nutritional recommendations and complementary therapies you suggest to improve my quality of life and general health?
Symptoms & Side Effects
- Will I have long-term side effects or permanent disability from my brain tumor or treatment? If so, can you help me create a management plan?
- What are the side effects of my long-term medication (steroids, seizure medications)?
- What are the side effects of my short-term medication and treatments (chemotherapy, radiation)?
- Do I need physical, speech or occupational therapy?
- Where can I, my caregiver and family find mental health support services?
- Can you suggest support groups, financial assistance services, and/or a cancer resource center in the area for myself and my caregiver?
- Can you recommend any local transportation assistance programs?
If after discussing your returning to driving with your doctor, you cannot drive, ask about recommendations for transportation assistance. Often, cities will have discounted transportation passes for people with disabilities.