Patient & Caregiver Toolkit
INFORMED IN 30
Informed in 30 is a video series that breaks down complex scientific concepts at the forefront of brain tumor research and treatment. Leading researchers and doctors will answer your questions and keep you informed on cutting edge advancements and how they will impact the brain tumor landscape.
Telehealth Resources
There are several things you can do to ensure that your telehealth appointment is successful. We’re providing some helpful resources to guide you like our Preparing for Your Telehealth Visit form, Telehealth Visit Checklist, and a Checking Your Vitals video so that you can get the most out of your time with your healthcare provider.
Clinical Trial Finder
The purpose of a clinical trial is to determine the most effective and safest treatment for a disease. Clinical trial evaluation is a key step to translating research into new medicines that can provide better outcomes for patients. The NBTS Clinical Trial Finder is intended to help raise awareness and increase participation in clinical trials to facilitate brain tumor research and accelerate the development of new drugs and treatments for patients.
Brain Tumor Support Conversations
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.
Personalized Support and Navigation
NBTS Patient Navigator is a medical professional who responds to outreach from brain tumor patients and care partners with quality, unbiased information, resources, support programs and services, and assists in meeting other brain tumor-related needs of patients and care partners.
Mental Health and Wellbeing
Mental health and wellbeing is a critical component of living with a brain tumor. As such, the National Brain Tumor Society is very pleased to introduce our “Meditation Mondays” program. These virtual meditation classes welcome people from all backgrounds and abilities to learn techniques of meditation and mindfulness.
Brain Tumor Facts
Today, an estimated 700,000 people in the United States are living with a primary brain tumor, and an estimated 78,980 more will be diagnosed in 2018. Brain tumors can be deadly, significantly impact quality of life, and change everything for a patient and their loved ones. They do not discriminate, inflicting men, women, and children of all races and ethnicities.
