Stories

William’s Journey On February 15, 2021, after our family was dealing with a bout of COVID, 8-month-old William woke up happy and active as usual. At 1 p.m., we noticed he started staring off into space and was very quiet, which, if anyone knows William, was very odd. He wouldn’t eat and then started to vomit, so […] August 28, 2023

Glioblastoma vs. Goals I received my glioblastoma diagnosis two years ago, at the age of 29. The MRI results, the brain surgery, the doctor visits, the second opinions, the support groups, the decisions I was being asked to make…at first, it all seemed so completely unreal. But slowly and surely, it began to sink in: The prognosis, the […] July 19, 2023

Val’s Journey Val was diagnosed with glioblastoma after experiencing a seizure while out to lunch with a friend of ours who was a retired nurse. At first, we believed she had had a stroke, but after further testing, it was confirmed that she had glioblastoma. On March 8, 2022, she went in for surgery to remove most […] July 19, 2023

Strong Will This has the potential to be a very long story as our remarkable and beloved son, Will, was diagnosed with glioblastoma in early May 2012, entered hospice on May 13, 2022, his 40th birthday and died in June of last year. Growing up, Will was a sweet little boy who loved soccer and was a […] July 19, 2023

Chris and Alicia’s 16-Year GBM Battle On July 13, 2003, my future husband’s life (and mine) changed forever. He had a grand mal seizure. Scans showed a large tumor. On August 8, 2003, Chris had surgery to remove a tumor the size of an egg. He became disabled but was alive. He still had to go through radiation and chemo.  We […] July 19, 2023