Stories

How come I didn’t Know I began to lose my hearing at the age of 17 and my audiologist chalked it up to a case of otosclerosis. I always had seasonal allergies with headaches, which my PCP thought nothing of. I wound up needed glasses by 19 and am still a bit farsighted. Fast forward through my awkward 20’s and […] June 11, 2021

Avett’s Avengers Avett’s story began on December 18, 2014. He had four seizures and we took him to the ER where a CT revealed a mass on the left frontal lobe of his brain. He was just 22 months old. Avett is one tough guy! He has had 2 brain surgeries, several rounds of inpatient chemo, 31 […] June 11, 2021

Thoughts as a caregiver and now a widow My husband was diagnosed in January of 2020 and passed in October of 2020. I was the primary care giver and also worked fulltime with intermittent FML. I tried to get assistance and help but was unable to until he was placed in Hospice just a couple weeks before he passed. Because of COVID I […] June 11, 2021

AC In 2010 – 5 days following my first craniotomy I participated in the NBTS Boston Brain Tumor Walk. By the time I was going in for my second craniotomy I knew what to expect. I always knew that the potential for reoccurrence was inevitable. I had done a lot of research about oliodendrogliomas, gliablastomas. Then, […] June 11, 2021

My Glioblastoma On March 6, 2021, I was working as a pharmacy technician at Ingles, as I have done for the past 8 years. Suddenly my left leg felt like someone dumped concrete inside it. Then my left arm dropped and became unusable. My husband picked me up I went to my chiropractor thinking it was my […] June 11, 2021