My mom survived a brain tumor: Who’s your superhero? Like many families, my mom is my best friend. We share everything together – from our love for animals, kayaking, adventuring, and most importantly, running. My mom, Sue, and I have ran over 15 half marathons together and countless 10ks. In 2016, my mom was diagnosed with a “mass bigger than a golf ball” on […] June 11, 2021
My Story It will never happen to me. I always had that belief. It hit me hard when I suddenly got to know that I have hemangioblastoma and could not believe it as is never had any symptoms at all throughout my life. My biggest worry was about my 2 year old son. It became a bit […] June 11, 2021
How come I didn’t Know I began to lose my hearing at the age of 17 and my audiologist chalked it up to a case of otosclerosis. I always had seasonal allergies with headaches, which my PCP thought nothing of. I wound up needed glasses by 19 and am still a bit farsighted. Fast forward through my awkward 20’s and […] June 11, 2021
Avett’s Avengers Avett’s story began on December 18, 2014. He had four seizures and we took him to the ER where a CT revealed a mass on the left frontal lobe of his brain. He was just 22 months old. Avett is one tough guy! He has had 2 brain surgeries, several rounds of inpatient chemo, 31 […] June 11, 2021
Thoughts as a caregiver and now a widow My husband was diagnosed in January of 2020 and passed in October of 2020. I was the primary care giver and also worked fulltime with intermittent FML. I tried to get assistance and help but was unable to until he was placed in Hospice just a couple weeks before he passed. Because of COVID I […] June 11, 2021
Your voice matters. Raise awareness by sharing your story and showing others that they are not alone. Lend your voice to the National Brain Tumor Society by submitting your story.