Stories

My mom survived a brain tumor: Who’s your superhero? Like many families, my mom is my best friend. We share everything together – from our love for animals, kayaking, adventuring, and most importantly, running. My mom, Sue, and I have ran over 15 half marathons together and countless 10ks. In 2016, my mom was diagnosed with a “mass bigger than a golf ball” on […] June 11, 2021

My Story It will never happen to me. I always had that belief. It hit me hard when I suddenly got to know that I have hemangioblastoma and could not believe it as is never had any symptoms at all throughout my life. My biggest worry was about my 2 year old son. It became a bit […] June 11, 2021

How come I didn’t Know I began to lose my hearing at the age of 17 and my audiologist chalked it up to a case of otosclerosis. I always had seasonal allergies with headaches, which my PCP thought nothing of. I wound up needed glasses by 19 and am still a bit farsighted. Fast forward through my awkward 20’s and […] June 11, 2021

Avett’s Avengers Avett’s story began on December 18, 2014. He had four seizures and we took him to the ER where a CT revealed a mass on the left frontal lobe of his brain. He was just 22 months old. Avett is one tough guy! He has had 2 brain surgeries, several rounds of inpatient chemo, 31 […] June 11, 2021

Thoughts as a caregiver and now a widow My husband was diagnosed in January of 2020 and passed in October of 2020. I was the primary care giver and also worked fulltime with intermittent FML. I tried to get assistance and help but was unable to until he was placed in Hospice just a couple weeks before he passed. Because of COVID I […] June 11, 2021