Guest Blog: A Patient and Philosopher Goes to the Biggest Brain Tumor Research Conference of the Year Glioblastoma patient and NBTS Board member, Adam Hayden, reflects on attending the 2022 Society for Neuro-Oncology Annual Meeting The Philosopher-Patient I was diagnosed with glioblastoma in the final year of my graduate studies, ironically specializing in the Philosophy of Science. Ironic because what could be more absurd than a philosopher with brain cancer?! The brain […] December 16, 2022
Katie & Pete’s Story: Navigating Financial Challenges Following a Glioblastoma Diagnosis Katie M. sat anxiously in the Cleveland-area hospital alongside her husband, Pete, who had been recently diagnosed with a brain tumor. A million thoughts ran through her head as Pete was in the ICU awaiting surgery in June 2018. A shrill ring interrupted her thoughts — her husband’s boss, from the architecture firm he worked […] October 4, 2022
Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish. “I got […] August 11, 2022
Turning Lemons into Lemonade After a Glioblastoma Diagnosis “Get your ice-cold lemonade!” These words reverberated through the air outside the Yale School of Medicine as Claire and Molly Lindenbach tried to garner sales for their “Lemon-Aid” Stand. The unusual sight attracted the attention of students and professionals working in the area. Only four months earlier, Claire and Molly’s dad, Brett, worked as a […] August 4, 2022
Guest Blog: My Dad’s Diagnosis Continues to Bring Our Family Together My father, Urbano, was the first in his family to come to the U.S. in the late ’70s from his hometown in Tequila, Mexico. From as far back as I can remember, he has always put family first. My childhood memories are focused around big family events because everything was a cause for celebration. The most […] July 20, 2022