News

Biomarker Testing Gave Julia Answers and the Confidence to Grow Her Family At 26, Julia was a new mom and five months postpartum when her world stopped: she had a brain tumor. After surgery, her health care team believed it was aggressive cancer. But thanks to biomarker testing, Julia’s path — and her prognosis — changed entirely.  The Initial Diagnosis In 2019, Julia started experiencing strange, unsettling […] May 9, 2025

Ependymoma Survivor Inspires Action at Head to the Hill Shawn W. never imagined his brain tumor experience would lead him to Capitol Hill, sitting across from a congressman and making a direct impact on legislation. But in May 2024, that’s exactly where he found himself — telling his story, advocating for the brain tumor community, and witnessing firsthand how personal experiences can drive real […] March 18, 2025

How Biomarker Testing Changed Everything for a Patient With Brainstem Glioma When Ben S-L. misjudged a corner and walked straight into a wall at work, he realized something wasn’t right. This incident, combined with his increasing headaches and a numb tongue, led Ben to see a neurologist and demand an MRI. Two weeks before turning 32, doctors diagnosed Ben with an inoperable high-grade brainstem glioma. Ben […] March 4, 2025

Distinguish Disease From Illness to Raise Awareness for GBM I was diagnosed with glioblastoma in June 2016 while completing the graduate requirements for my master’s degree in philosophy. When I say “completing,” I mean this literally. My spouse, Whitney, snapped pictures of me, donning my gown, sitting up in my hospital bed surrounded by notebooks, completing one of my final papers. The month-long stay […] July 17, 2024

Ana’s Story: Adapting to Challenges After a Central Neurocytoma Diagnosis In 2022, at the age of 31, Ana H. began experiencing sporadic migraines and sinus infections. One day, while at work as a speech language pathologist, Ana felt a bad headache coming on. “Suddenly, my vision starts to go, and I tell my co-workers to come into my office because I can’t even see anymore,” […] May 29, 2024