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Advocate Pushes for Improved Quality of Life and Increased Research Funding A busy working mom, Jyothi was no stranger to shuttling her two boys around for school and extracurricular activities. Her youngest son, Nitin, began complaining of headaches after playing tennis and also started to experience difficulties blowing to play his clarinet. A pediatrician suggested a CT scan to rule out anything more serious. “It was […] January 31, 2023

Guest Blog: Training for a Marathon Brought Me Back After My Son’s Brain Tumor Diagnosis Earlier this year, I joined a team of 50 Gray Nation Endurance®️ athletes training to run in the 2022 NYC Marathon to raise critical funds for the National Brain Tumor Society. Training for the marathon was just what I needed to survive as a caregiver. It’s surreal to look back at the past year and […] November 18, 2022

Pediatric Brain Tumor Survivor Shares Story at the Colorado Brain Tumor Walk & Run “Thomas the Tank Engine” — the TV show about a blue train with red piping — captured the heart of a young boy named Cole at an early age. When the life-sized Thomas the Tank Engine pulled up on the track at the Durango & Silverton Narrow Gauge Railroad in Colorado, 2-year-old Cole stood in […] September 26, 2022

The Mandell Family Turns Grief Into Action Following Toddler’s ATRT Diagnosis A spring break trip to Savannah, Ga., to visit family abruptly changed when 15-month-old Emily suffered a massive seizure. Emily’s parents, Brian and Katie, rushed her to the local ER, where a CT scan found a large mass in the back of her brain. An MRI confirmed the tumor the following day. “We were just […] September 6, 2022

Philadelphia Firefighter with Glioblastoma Blazes Ahead for Research Credit: Clem Murray / The Philadelphia Inquirer Sirens blared as firefighters descended upon Philadelphia Energy Solutions, the largest gasoline refinery complex on the East Coast, following a series of explosions in June 2019. Linda Long joined more than 100 Philadelphia firefighters to combat the blaze that took more than 24 hours to extinguish.  “I got […] August 11, 2022