News

Beloved Stuffed Animal Provides Comfort to Jacob and His Family Five-year-old Jacob M. clutched his beloved Mr. Puddles — a tuxedo cat stuffed animal that traveled everywhere Jacob went — as he walked back for radiation. Mr. Puddles provided comfort to the little boy during his many appointments after he was diagnosed with diffuse intrinsic pontine glioma (DIPG). With Mr. Puddles beside him, Jacob never […] May 17, 2023

Brain Tumor Diagnosis Spurs Nomadic Lifestyle A brain tumor diagnosis in 2014 quickly grounded Dace H.’s fast-paced job at a technology start-up. The life change pushed Dace to slow down and focus on the things that mean the most to him — spending time with friends and family, being in nature, and exploring his creativity through writing and photography. From there, he […] May 16, 2023

Guest Blog: Walking in Memory of My Father at Race for Hope DC It’s April 30, 2022, and I’m walking along my normal route while listening to a playlist of my Dad’s favorite rock music to help me feel closer to him. As I walked by Freedom Plaza, I was met with a large National Brain Tumor Society banner for an event the next day, and it stopped […] April 5, 2023

Patient Defends Dissertation with Unwavering Resilience After Brain Tumor Diagnosis Christina E. entered the lobby of the 2022 San Diego Comic-Con to reunite with friends for the seventh time in nine years. A lot had changed since she’d last attended the largest annual comic and pop culture convention in the world in 2019:  a pandemic, for one, a career change, and her ability to speak […] March 22, 2023

AJ Forms Denver Community Ride to Accelerate Breakthroughs As a young professional, AJ Colaizzi turned to cycling to get more active while also enjoying the outdoors. He signed up for a bike ride in Colorado that covers 110 miles in 10,000 feet of elevation. As he began to train, AJ realized that “maybe I should try to fundraise for a cause and put […] February 21, 2023