News

From the CEO’s Desk: Let’s Lean In During Childhood Cancer Awareness Month About this time last year, the National Brain Tumor Society was down in Washington, D.C. at the famous National Press Club with a number of partners and collaborators to officially announce the launch of “Project Impact: A Campaign to Defeat Pediatric Brain Tumors,” our new fundraising effort to help resource the Defeat Pediatric Brain Tumors […] September 13, 2017

Guest Blog: Not Your Average “Joe” – Connecting with Your Members of Congress Rich Paisner is a 12-year astrocytoma survivor and a Massachusetts brain tumor advocate. Rich lives in Newton, MA with his wife and three daughters. “Hi, I’m Joe. I’m so happy to be here.” After a series of calls and emails, those were the first words we spoke to one another. I’m pretty sure I won’t […] July 26, 2017

Speaking Up for Brain Tumor Causes: Busy Two Weeks in the Nation’s Capital Last week, we had some good news…and some not so great news…from our nation’s capital, as it pertains to public policy measures that could affect brain tumor patients. First, the bad news. Today, the U.S. House of Representatives passed the American Health Care Act (AHCA) by a slim margin – 217 members voted in favor, […] May 8, 2017

Standing together makes the difference – Head to the Hill 2017 has been a time of unprecedented change in DC. While the debate about healthcare has remained top of mind, there have been questions we have fielded regarding proposed cuts to research funding and the future of such crucial legislation as the Childhood Cancer STAR Act. While we continue to work tirelessly to fund brain […] April 6, 2017

2017 National Brain Tumor Society Legislative Agenda To guide our advocacy efforts each year, the National Brain Tumor Society creates an annual “Legislative Agenda.” Our yearly Legislative Agenda* reflects the larger strategy and goals of the Organization, complements our research-funding efforts, and is essential to accomplishing our mission of better treatments and ultimately cures for brain tumors. Each year, we review and revise […] March 7, 2017