Guest Blog: Not Your Average “Joe” – Connecting with Your Members of Congress Rich Paisner is a 12-year astrocytoma survivor and a Massachusetts brain tumor advocate. Rich lives in Newton, MA with his wife and three daughters. “Hi, I’m Joe. I’m so happy to be here.” After a series of calls and emails, those were the first words we spoke to one another. I’m pretty sure I won’t […] July 26, 2017
Speaking Up for Brain Tumor Causes: Busy Two Weeks in the Nation’s Capital Last week, we had some good news…and some not so great news…from our nation’s capital, as it pertains to public policy measures that could affect brain tumor patients. First, the bad news. Today, the U.S. House of Representatives passed the American Health Care Act (AHCA) by a slim margin – 217 members voted in favor, […] May 8, 2017
Standing together makes the difference – Head to the Hill 2017 has been a time of unprecedented change in DC. While the debate about healthcare has remained top of mind, there have been questions we have fielded regarding proposed cuts to research funding and the future of such crucial legislation as the Childhood Cancer STAR Act. While we continue to work tirelessly to fund brain […] April 6, 2017
2017 National Brain Tumor Society Legislative Agenda To guide our advocacy efforts each year, the National Brain Tumor Society creates an annual “Legislative Agenda.” Our yearly Legislative Agenda* reflects the larger strategy and goals of the Organization, complements our research-funding efforts, and is essential to accomplishing our mission of better treatments and ultimately cures for brain tumors. Each year, we review and revise […] March 7, 2017
A Night of Unity – National Brain Tumor Society’s 2016 Gray Gala From across the country, individuals impacted by brain tumors came together at Boston, Massachusetts’ Seaport World Trade Center to honor the remarkable achievements of brain tumor advocates, researchers, and volunteers, and to affirm our commitment to the mission that the National Brain Tumor Society (NBTS) shares with this community to find new treatments and an […] December 2, 2016