News

How the New Inflation Reduction Act Affects the Cost of Brain Tumor Treatment On August 16, President Joe Biden signed into law the Inflation Reduction Act, a sweeping set of policies that includes new provisions aimed at reducing the cost of health care for persons covered under the Medicare program.   The policies that will impact patients with brain tumors include: Capping patients’ out-of-pocket costs for drugs under Medicare […] October 4, 2022

Pediatric Brain Tumor Survivor Shares Story at the Colorado Brain Tumor Walk & Run “Thomas the Tank Engine” — the TV show about a blue train with red piping — captured the heart of a young boy named Cole at an early age. When the life-sized Thomas the Tank Engine pulled up on the track at the Durango & Silverton Narrow Gauge Railroad in Colorado, 2-year-old Cole stood in […] September 26, 2022

How to Talk to Kids About Their Brain Tumor Diagnosis “Your child has a brain tumor.” It’s a phrase no parent wants to hear, yet approximately 5,900 families will receive the news in 2022 alone.  This Childhood Cancer Awareness Month, NBTS is sharing stories from families in the brain tumor community. NBTS asked four families, “When faced with a brain tumor diagnosis, how did you […] September 16, 2022

The Mandell Family Turns Grief Into Action Following Toddler’s ATRT Diagnosis A spring break trip to Savannah, Ga., to visit family abruptly changed when 15-month-old Emily suffered a massive seizure. Emily’s parents, Brian and Katie, rushed her to the local ER, where a CT scan found a large mass in the back of her brain. An MRI confirmed the tumor the following day. “We were just […] September 6, 2022

Guest Blog: Finding Support to Help You Navigate Grief as a Member of the Brain Tumor Community My journey with grief began when my late husband, Steven, was diagnosed with glioblastoma in 2009. That day our hopes, dreams, and expectations for the life we had created for our family were forever changed. His death just 22 months later added to the grief I was already experiencing.  Like so many, I was bereft […] August 30, 2022