News

Update from the Capital: Funding for the Congressionally-Directed Medical Research Program Beginning in September of 2024, Congress passed a series of what’s known as “Continuing Resolutions” in lieu of a full set of spending bills – or budget – to fund the government for Fiscal Year 2025. A Continuing Resolution (or “CR”) typically keeps funding for every government function at the same level as the previous […] April 2, 2025

When Life Doesn’t Pause: A Young Adult’s Story of Family, Work, and Brain Cancer Melissa M. sat in the OR waiting room, one hand resting on her belly, the other gripping a hospital chair. At nine months pregnant, she was about to give birth to their daughter — but first, her husband, Joe, had to make it through a craniotomy following a brain tumor recurrence. “It was so hard,” […] April 1, 2025

Let’s Talk About Oligodendroglioma While oligodendroglioma is a relatively rare brain tumor, accounting for 1.2% of all primary brain tumors, an estimated 14,950 Americans are living with this tumor and navigating the unique challenges of this disease.  Let’s talk about what makes oligodendrogliomas different from other brain tumors and the difficulties people living with this tumor type and their […] March 28, 2025

New Drugs for Patients with Brain Tumors: How Federal Funding Pays Off The National Institutes of Health (NIH) is the largest funder of brain tumor research in the world – with most funding coming in through the NIH’s National Cancer Institute (NCI). But that funding is not always guaranteed. Every year, NBTS and our strong base of volunteer advocates speak out to policymakers in Washington, D.C., about […] March 25, 2025

Ependymoma Survivor Inspires Action at Head to the Hill Shawn W. never imagined his brain tumor experience would lead him to Capitol Hill, sitting across from a congressman and making a direct impact on legislation. But in May 2024, that’s exactly where he found himself — telling his story, advocating for the brain tumor community, and witnessing firsthand how personal experiences can drive real […] March 18, 2025