News

New Brain Tumor Clinical Trials: July- December 2022 It can be hard to keep track of new clinical trial opportunities opening across the United States. There are many clinical trials actively enrolling patients, and this report provides a summary of the studies that have recently opened or started for patients with a primary brain tumor*. Follow the hyperlink above to learn more about […] January 20, 2023

How to Support Grieving Brain Tumor Community Members While grief is a universal experience, individuals process their grief differently. This can make it challenging for loved ones to know how best to support someone who is grieving because what worked for one friend or family member may not work for another loved one.  Holly Gainsboro, the facilitator of NBTS’s Grief Support Conversations, shares […] January 19, 2023

[White Paper] Assessing Uptake of Remote Consent for Clinical Trials: Opportunities to Reduce Patient Burden A white paper from the National Brain Tumor Society and the LUNGevity Foundation Executive Summary While the COVID-19 public health emergency has caused major disruption to many clinical studies, one positive outgrowth has been the opportunity afforded trials sponsors, investigators, and regulators to implement elements of decentralized trials in on-going clinical studies. Decentralized clinical trials […] January 18, 2023

Managing Scanxiety: 7 Tips to Help Patients with a Brain Tumor Cope with Scan-Related Anxiety As NBTS addressed in an earlier blog post about scanxiety, scanxiety is common, and most patients with a brain tumor will experience scan-related anxiety. While scanxiety can’t be avoided altogether, there are ways to manage the symptoms.  “For those living with a brain tumor, MRIs often lead to one’s diagnosis and play an integral part […] January 17, 2023

Your Advocacy in Action Every year, NBTS sets a policy agenda that supports the vision of our organization: to conquer and cure brain tumors, once and for all. Advocates like you push our priorities forward by emailing your members of Congress, sharing our action alerts on social media, and participating in virtual meetings and events like Head to the Hill. Thanks to […] January 3, 2023