News

New Drugs for Patients with Brain Tumors: How Federal Funding Pays Off The National Institutes of Health (NIH) is the largest funder of brain tumor research in the world – with most funding coming in through the NIH’s National Cancer Institute (NCI). But that funding is not always guaranteed. Every year, NBTS and our strong base of volunteer advocates speak out to policymakers in Washington, D.C., about […] March 25, 2025

Ependymoma Survivor Inspires Action at Head to the Hill Shawn W. never imagined his brain tumor experience would lead him to Capitol Hill, sitting across from a congressman and making a direct impact on legislation. But in May 2024, that’s exactly where he found himself — telling his story, advocating for the brain tumor community, and witnessing firsthand how personal experiences can drive real […] March 18, 2025

New Grants Aim to Improve Quality of Life for Patients with Brain Tumors and Their Caregivers  Today, the National Brain Tumor Society (NBTS) is announcing its first-ever Quality of Life Research grants, part of a concerted new program aimed at improving the lives of those facing brain tumors, both patients and their caregivers. The new grants, supported in part by Stachestrong, will fund two projects, each for $200,000 over two years. […] March 17, 2025

Update from the Capital: Fiscal Year 2025 Funding Update The following is a brief, high-level update on the complicated and very fluid political situation unfolding around a possible government shutdown – and implications for federal funding of brain tumor research. Unless Congress acts, government funding will run out on Friday (March 14). The President recently called for Congress to pass a “Continuing Resolution (CR),” […] March 11, 2025

How Biomarker Testing Changed Everything for a Patient With Brainstem Glioma When Ben S-L. misjudged a corner and walked straight into a wall at work, he realized something wasn’t right. This incident, combined with his increasing headaches and a numb tongue, led Ben to see a neurologist and demand an MRI. Two weeks before turning 32, doctors diagnosed Ben with an inoperable high-grade brainstem glioma. Ben […] March 4, 2025