News

7 Tips to Manage Physical Fatigue as a Person Living With a Brain Tumor Fatigue is one of the most common and debilitating challenges faced by people with brain tumors. Unlike ordinary tiredness, this type of fatigue can be relentless and impact every aspect of daily life. Understanding fatigue and learning how to manage it is key to improving quality of life for patients and their caregivers. What is […] January 30, 2025

Update from the Capital: Government Developments NBTS is currently working to better understand the impact of any of the recent actions and directives announced by the new Administration as it relates to brain tumor research and care at the National Institutes of Health (NIH) and other related federal agencies. This is a developing situation, and new updates are being reported daily […] January 29, 2025

Network Inadequacy – Shining a Light on Access to Care Barriers for Patients with Brain Tumors  One family found out in the most devastating way that the top cancer center they had uprooted their lives to access was outside their health insurance plan’s provider network Betting the Farm Linda Giffin Citron had been living with an oligodendroglioma for nearly 20 years in 2015. Despite multiple rounds of recurrences and treatments and […] November 25, 2024

Medicare 101 for Patients with Brain Tumors and Their Caregivers Navigating Medicare can be a complex process, especially for those facing a brain tumor diagnosis. Understanding how Medicare works and what it covers can be crucial for patients and caregivers to manage health care costs and make informed decisions about treatment options.  In this guide, we’ll cover key aspects of Medicare, including eligibility and coverage, […] November 25, 2024

Unlocking Better Outcomes: Melissa’s Advocacy for Biomarker Testing and Brain Cancer Research Last month, Melissa F. and her partner Jess E. arrived bright and early to help set up for the Race for Hope Greater Philadelphia, an event that has become deeply personal to them both. For Melissa, it’s a way to give back to the community that has supported them since Jess’s brain tumor recurrence in […] November 8, 2024