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Guest Blog: Finding Solace in Art and Running After My Sister’s Death I’ve been an artist since I was a little kid. In 2011, I moved from San Francisco to New York to pursue a Master’s in Art Politics at the Tisch School of the Arts at New York University. I’ve been here ever since, working in the arts and doing my own socially engaged projects. I’ve […] November 17, 2023

Larry and Lynn Make Lasting Impact Through Mentorship and Fundraising Friends from around the world joined a room full of women via FaceTime to watch a hairdresser cut Lynn O.’s bright red locks, which were to be donated. Her friends were shocked to see Lynn, known for her long red hair, choose to shave her head. For Lynn, her decision was born out of necessity […] November 14, 2023

5 Essential Apps for Caregivers of Patients with Brain Tumors Caring for a loved one with a brain tumor is a profound and often challenging experience. As a caregiver, you not only provide physical support but also offer the essential emotional comfort that your loved one needs. Care coordination, in particular, can be a daunting aspect of this responsibility, with medication management, appointment scheduling, and […] November 8, 2023

Government Shutdown: What Patients with Brain Tumors & Care Partners Need to Know Update (9/30/23): Congress passed a short-term Continuing Resolution (CR), which will keep the government operating at Fiscal Year 2023 funding levels until mid-November buying more time to come to an agreement on a full FY 2024 budget. While a CR is preferable to a shutdown, the brain tumor community needs increases to research funding as […] September 26, 2023

Mother Advocates for Improved Clinical Trial Access After Daughter’s Brain Tumor Diagnosis Whether hiking through trails perched atop twenty-foot cliffs or touching live sharks and stingrays, middle schooler Ava Q.E. was fearless — always volunteering to go first, thanks to her adventurous personality. It was a shock when Ava started repeatedly losing her vision for 5-10 seconds each time she stood up.  Her eye doctor ordered an […] September 19, 2023