Skip to content
BACK to Stories

I have what?!

Published on January 23, 2019 in Share Your Story

For years growing up, I had horrible headaches. Shut the door, blackout all the windows, leave me alone headaches. But every time i would bring it up to a new doctor, they would push it off and tell me that I am a young girl going through puberty, its just my cycle. March of 2015 I finally found a doctor that would listen to me. I had horrible headaches, debilitating ones at that but as i had aged they had gotten worse and sometimes i would have facial numbness before getting one. Finally this doctor listened to what I had to say instead of trying to push medicine down my throat. March 14th, i turned 25 and had a MRI that day. He called me 6 hours after my MRI and told me that i needed to call him back when I was out of work, to call his personal cell phone because it would be late by the time i had gotten out of work. I called him with my family all around, wondering what he was going to say. “Rachel, you have a brain tumor”- words I will never forget. It was sitting on the Optic nerve in my right eye and winding down to and around my brain stem.

The days after that were a blur, he wasn’t sure what type of tumor it was and wouldn’t be able to tell me until they took it out. I had my surgery scheduled for April 16th, but was later postponed due to that fact that i was 8 weeks pregnant and the surgeon didn’t want to do anything until after I had the baby. March of 2016 I had the surgery, scared as ever because I had a newborn at home that needed me. They biopsied it, turns out it was a Dermoid and completely benign. Since then, I do have extremely bad headaches and even have occasional seizures. Thankful that even though I still do have extremely bad headaches, I am healthy and have a beautiful baby boy.


Opinions expressed within this story belong solely to the author and do not reflect the views or opinions of the National Brain Tumor Society.

Take Action this CCAM

Urge Congress to co-sponsor the BRAIN Act, strengthen funding for brain tumor research, and protect merit-based research. Act today because patients with pediatric brain tumors deserve more — more and better treatment options, more hope, and more time.

You have Successfully Subscribed!