Resources for Patient and Caregiver Assistance

Resources for Patient and Caregiver Assistance:

Though National Brain Tumor Society does not provide direct financial support for our community, we are honored to know and provide contact information for those great organizations who do. If you see that a resource you use/d is not listed here, please contact us to add their information to the list:

Air Charity Network
Provides transportation for treatment for those who otherwise cannot fly commercially.

Allyson Whitney Foundation – Young Adults Between 15-36
Our vision is to shine a spotlight on an under-served demographic of young adults with cancer and to place an emphasis on the need for rare cancer research. The Allyson Whitney Foundation primarily provides individuals with ‘Life Interrupted Grants’™ to ease their financial burden so that they can concentrate their energy on healing.

Angel Foundation – Minnesota Residents Only
Application for assistance provided in link above.

Brain Tumor Network
Free navigation resource for brain tumor patients and caregivers.

CancerCare offers limited financial assistance for cancer-related costs such as transportation and child care, and their oncology social workers can help you find resources.

Cancer for College
College scholarships for cancer patients.

Cancer Horizons
Provides resources for financial support in terms of rent, housing, medical bills, caregiver assistance, life insurance funding, and legal assistance.

Cancer Legal Care – Minnesota Only
Free legal care to those affected by cancer who otherwise cannot afford legal costs.

Cancer Legal Resources
Online legal resources for cancer patients and caregivers.

Corporate Angel Network
Provides cancer patients with free transportation to an NCI or American College of Surgeons recognized center for treatment.

First Descents
Provides guided adventures for young cancer patients.

Foundation for Appropriate and Immediate Temporary Help (FAITH)
Helps families with immediate and temporary support in areas of: rent, mortgage, utilities, education, medical bills, etc. in Northern Virginia.

Good Days
(877) 968-7233
6900 Dallas Pkwy, Ste 200, Plan, TX, 75024
Helps patients who have limited financial means access the medications they need. Their program helps qualified patients pay their insurance co-pays so they can get immediate access to prescription medications. Helps with transportation and lodging needs. Check website for up-to-date covered diagnoses.

Prescription discount card program. Helps you to identify pharmacy providing lowest price for your medications, as well.

HealthWell Foundation
Provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. Focus of disease funding varies, so check website for up-to-date list of covered diagnoses and medications.

Hope Lodge
Some hospital systems have Hope Lodge, a place for caregivers to stay during treatment and recovery. Check to see if your hospital has a Hope Lodge. Each Hope Lodge offers cancer patients and their caregivers a free place to stay when their best hope for effective treatment may be in another city. Not having to worry about where to stay or how to pay for lodging allows guests to focus on getting better. Hope Lodge provides a nurturing, home-like environment where guests can retreat to private rooms or connect with others. Every Hope Lodge also offers a variety of resources and information about cancer and how best to fight the disease.

Inheritance of Hope
Provides family vacations for families with a parent diagnosed with a terminal illness.

Lifeline Pilots
Assistance with transportation for treatment

Centers for Medicare & Medicaid Services

Musella Foundation
Assistance for insured GBM patient co-pays up to $5,000.

National Cancer Legal Resources Network
Provides increased access to free legal support for cancer patients and caregivers.

National Collegiate Cancer Foundation
The National Collegiate Cancer Foundation was established to provide services and support to young adults whose lives have been impacted by cancer and who have continued with their education throughout treatment or after their treatment.

National Cancer Institute Centers of Excellence
NCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its patient services and research capabilities.

National Organization for Rare Disorders (NORD)
NORD’s medication assistance programs help people with certain conditions. Check their website for a complete list of programs.

Needy Meds
NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.

Nicki Leach Foundation
The primary mission of the Nicki Leach Foundation, a non-profit organization, is to provide modest financial assistance to young adults (18-30) afflicted with cancer. Additionally, the foundation has an endowed scholarship fund at the University of North Florida.

Patient Access Network Foundation
To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Patient Advocate Foundation’s Co-Pay Relief (CPR)
Pays your deductible and full copay for prescriptions covered by your insurance, as long as they are taken to treat an eligible medical condition, and if you have financial need.

Patient Advocated Foundation’s Scholarships for Survivors
Scholarships for students pursuing a bachelor’s degree under the age of 25 who have been diagnosed in the past five years.

Patient Services Incorporated
PSI helps people with specific conditions to pay their prescription copayments regardless of income. Check their website for a complete list of conditions. This list may change, depending on funding.

Patient Travel Referral Program
Assistance with travel for treatment.

Partnership for Prescription Assistance (PPA)
888-4-PPA-NOW (888-477-2669)

Patient Services Inc.
Committed to supporting people with expensive chronic illnesses and conditions through locating solutions with health insurance and assisting with premiums and prescription copayments to facilitate positive health and well-being. Check website for up-to-date list of covered diagnoses and medications.

Rally Foundation
One time small grant for cancer patients and their families.

Offers a national database of organizations across the country that help build accessibility ramps for those without the means to afford. Database contains charitable programs and institutions that offer both funding and building services.

State by state listing of all co-pay and prescription discount programs.

RX Hope
Organization helps patients and caregivers navigate the system to obtain critically needed prescription medication and, at times, helps to get medication costs covered.

RX Outreach
Non-profit pharmacy whose mission is to provide affordable medications.

The Sam Fund
Direct financial support and free online support and education for young adults.

Social Security Administration

SuperSibs! By Alex’s Lemonade Stand
Support for siblings of cancer patients.

Sy’s Fund
Fund meaningful gifts for young adults with cancer to help to pursue their dreams and passions. They also provide free services such as massage therapy.

Team Tessa – Maine Residents Only
Helps with groceries, bills, fuels, transportation costs, and medication co-pays.

Thrive Cancer Fertility Network
Financially helping young adults with fertility options in advance of cancer treatment, including support with retrieval, freezing and banking.

Ulman Cancer Fund for Young Adults
Direct 1:1 counseling, patient navigation and scholarships for young adults.

U.S. Department of Health & Human Services
Information on public assistance and food stamps
Check phonebook for your local office

U.S. Administration on Aging
Benefits for older adults
(Eldercare Locator finds resources in your community)

Prescription discount card program