Resources for Patient and Caregiver Assistance

Resources for Patient and Caregiver Assistance:

Though National Brain Tumor Society does not provide direct financial support for our community, we are honored to know and provide contact information for those great organizations who do. In listing a resource on this page, National Brain Tumor Society does not endorse or guarantee their services or the quality of their services. If you see that a resource you use/d is not listed here, please contact us to add their information to the list:

Financial Assistance

Allyson Whitney Foundation – Young Adults Between 15-36
Our vision is to shine a spotlight on an under-served demographic of young adults with cancer and to place an emphasis on the need for rare cancer research. The Allyson Whitney Foundation primarily provides individuals with ‘Life Interrupted Grants’™ to ease their financial burden so that they can concentrate their energy on healing.

Angel Foundation – Minnesota Residents Only
Application for assistance provided in link above.

Cameron Siemers Foundation for Hope
Each year, the Cameron Siemers Foundation for Hope awards a minimum of four Life Grants to young adults who are living with life-threatening illnesses. A Life Grant is an award of up to $5,000 to help young adults make a difference in their lives and their communities.

CancerCare offers limited financial assistance for cancer-related costs such as transportation and child care, and their oncology social workers can help you find resources.

CancerCare for Young Adults
Information and resources including counseling, telephone support groups, and financial assistance.

Cancer for College
College scholarships for cancer patients.

Cancer Horizons
Provides resources for financial support in terms of rent, housing, medical bills, caregiver assistance, life insurance funding, and legal assistance.

Cancer Survivors’ Fund
Cancer Survivors’ Fund is a non-profit organization that provides college scholarships and prosthetics for the benefit of persons diagnosed with cancer, receiving treatment for cancer or in remission to give them a new purpose and meaning in life.

Compassion Can’t Wait
When compassion can’t wait and single parent families are in despair, we help with urgent expenses to allow these caregivers to stay at their child’s bedside during catastrophic illness.

Database of scholarships for cancer patients, survivors and others touched by cancer.

Foundation for Appropriate and Immediate Temporary Help (FAITH)
Helps families with immediate and temporary support in areas of: rent, mortgage, utilities, education, medical bills, etc. in Northern Virginia.

Good Days
(877) 968-7233
6900 Dallas Pkwy, Ste 200, Plan, TX, 75024
Helps patients who have limited financial means access the medications they need. Their program helps qualified patients pay their insurance co-pays so they can get immediate access to prescription medications. Helps with transportation and lodging needs. Check website for up-to-date covered diagnoses.

HealthWell Foundation
Provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. Focus of disease funding varies, so check website for up-to-date list of covered diagnoses and medications.

National Collegiate Cancer Foundation
NCCF is committed to providing need-based financial support to young adult survivors who are pursuing higher education throughout their treatment and beyond. Furthermore, the Foundation promotes awareness and prevention of cancer within the young adult community

Needy Meds
NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can’t afford medications and healthcare costs. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases. All our information is accessible online, at no charge and without registration.

Nicki Leach Foundation
The primary mission of the Nicki Leach Foundation, a non-profit organization, is to provide modest financial assistance to young adults (18-30) afflicted with cancer. Additionally, the foundation has an endowed scholarship fund at the University of North Florida.

Patient Access Network Foundation
To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatment they need by paying for their out-of-pocket costs and advocating for improved access and affordability.

Patient Advocate Foundation National Finance Resource Directory
Provides a directory to search national and regional resources to improve access to quality care and decrease the financial burden of medical treatment.

Patient Advocate Foundation’s Co-Pay Relief (CPR)
Insurance copay, co-insurance and deductible assistance for cancer genetic and genomic testing.

Patient Advocated Foundation’s Scholarships for Survivors
Scholarships for students pursuing a bachelor’s degree under the age of 25 who have been diagnosed in the past five years.

Patient Services Incorporated
PSI helps people with specific conditions to pay their prescription copayments regardless of income. Check their website for a complete list of conditions. This list may change, depending on funding.

Rally Foundation
One time small grant for cancer patients and their families.

The Sam Fund
Direct financial support and free online support and education for young adults.

Social Security Administration

Love, Team Tessa
Helps with groceries, bills, fuels, transportation costs, and medication co-pays.

Thrive Cancer Fertility Network – Central Texas Only
Financially helping young adults with fertility options in advance of cancer treatment, including support with retrieval, freezing and banking.

Vital Options International
Vital Options was founded in 1983 as the first psychosocial and advocacy organization for young adults with cancer. It also broadcasts The Group Room ® cancer talk radio show weekly. They have expanded their mission to include direct support of patients, their caregivers and families across all chronic and life-threatening illnesses through the Selma Schimmel Vital Grant.

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Guidance and Counseling

American Brain Tumor Association
Social and emotional support CareLine.

Brain Tumor Network
Free navigation resource for brain tumor patients and caregivers.

Expanded Access to Investigational Treatments
To make expanded access easier, the Reagan-Udall Foundation for the FDA, with input from experts at the FDA, has launched Expanded Access eRequest which provides users a streamlined and convenient experience for applying for expanded access for individual patients in non-emergency settings.

Greg’s Mission
Greg’s Mission is a nonprofit that provides support, HOPE, education, current resources and awareness to patients suffering from brain tumors – especially Glioblastoma Multiforme (a grade 4 primary brain tumor).

Imerman Angels
An organization that creates personal, one-on-one connections among patients, survivors, caregivers, and those with increased risk.

National Collegiate Cancer Foundation
The National Collegiate Cancer Foundation was established to provide services and support to young adults whose lives have been impacted by cancer and who have continued with their education throughout treatment or after their treatment.

National Cancer Institute Centers of Excellence
NCI-Designated Cancer Centers deliver cutting-edge cancer treatments to patients in communities across the United States. Find a center near you and learn about its patient services and research capabilities.

National Organization for Rare Disorders (NORD)
NORD’s medication assistance programs help people with certain conditions. Check their website for a complete list of programs.

Patient Services Inc.
Committed to supporting people with expensive chronic illnesses and conditions through locating solutions with health insurance and assisting with premiums and prescription copayments to facilitate positive health and well-being. Check website for up-to-date list of covered diagnoses and medications.

SuperSibs! By Alex’s Lemonade Stand
Support for siblings of cancer patients.

Ulman Cancer Fund for Young Adults
A survivor-led organization based in Columbia, MD, with support and networking groups, college scholarships, a survival guide, and community grants to grassroots organizations.

U.S. Department of Health & Human Services
Information on public assistance and food stamps.

U.S. Administration on Aging
Eldercare Locator connects you to services for older adults and their families.

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Housing and Transportation

Air Charity Network
Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis.

Corporate Angel Network
Provides cancer patients with free transportation to an NCI or American College of Surgeons recognized center for treatment.

Healthcare Hospitality Network
The Healthcare Hospitality Network, Inc. (HHN) is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities.

Hope Lodge
Some hospital systems have Hope Lodge, a place for caregivers to stay during treatment and recovery. Check to see if your hospital has a Hope Lodge. Each Hope Lodge offers cancer patients and their caregivers a free place to stay when their best hope for effective treatment may be in another city. Not having to worry about where to stay or how to pay for lodging allows guests to focus on getting better. Hope Lodge provides a nurturing, home-like environment where guests can retreat to private rooms or connect with others. Every Hope Lodge also offers a variety of resources and information about cancer and how best to fight the disease.

Joe’s House
Joe’s House website lists thousands of places to stay across the country near hospitals and treatments centers that offer a discount for traveling patients and their loved ones.

Lifeline Pilots
Facilitates FREE transportation for such medical needs as on-going medical treatments, diagnosis and follow-up care.

Patient AirLift Services (PALS)
Patient AirLift Services is a nonprofit that arranges free flights for medical patients requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially. PALS also arranges volunteer flights for family members of patients as compassionate missions, to ensure patients have support when they are away from home for long periods.

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Cancer Legal Care – Minnesota Only
Free legal care to those affected by cancer who otherwise cannot afford legal costs.

Cancer Legal Resources
Online legal resources for cancer patients and caregivers.

National Cancer Legal Services Network
Provides increased access to free legal support for cancer patients and caregivers.

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Medicines and Prescriptions

America’s Pharmacy
Prescription savings program accepted in over 62,000 pharmacies across the U.S.

Prescription discount card program. Helps identify pharmacies providing the lowest price for your medications.

Medical Assistance
A search engine designed to help patients, caregivers and health care providers learn more about the resources available through the various biopharmaceutical industry programs.

Help patients and caregivers learn about ways to use pharmaceutical company programs and other resources to help reduce medication costs.

RX Hope
Organization helps patients and caregivers navigate the system to obtain critically needed prescription medication and, at times, helps to get medication costs covered.

RX Outreach
Non-profit pharmacy whose mission is to provide affordable medications.

Prescription discount card program

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Insurance Assistance

Centers for Medicare & Medicaid Services

Musella Foundation
Assistance for insured GBM patient co-pays up to $5,000.

Patient Advocate Foundation
Provides personalized case management, taking the lead on complex healthcare challenges facing patients and caregivers.

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Specialty Services

First Descents
Provides guided adventures for young cancer patients.

Inheritance of Hope
Provides retreats for families who have a parent diagnosed with a terminal illness.

Camp Kesem
Provides free summer camp for children of parents with cancer.

Offers a national database of organizations across the country that help build accessibility ramps for those without the means to afford. Database contains charitable programs and institutions that offer both funding and building services.

Sy’s Fund
Sy’s Fund is here to help young adults ages 18-39 who are facing the challenges of cancer by funding their creative passions, pursuits, and hobbies as well as integrative therapies such as acupuncture, reflexology, and therapeutic massage.

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