Stories

Living with Choroid Plexus Papilloma In March 2021, my husband, Matt, experienced severe headaches and dizziness, leading him to the ER. He was initially sent home with a diagnosis of vertigo, but the symptoms persisted, bringing him back to the emergency room the next day. This time, doctors noticed calcifications on his brain and referred him to a neurologist. Further […] April 16, 2025

Allison’s Acoustic Neuroma Story 2025 was supposed to be my year. My husband and I had just bought a home in 2024, eager to settle in, be closer to family, and start our life together. Everything seemed to be falling into place until suddenly, it wasn’t. The Symptoms In January 2025, I woke in the middle of the night […] April 10, 2025

From College to Chemotherapy: My Unexpected Brain Cancer Experience My name is Alex Edwards. I’m a 24-year-old brain cancer survivor currently living in Washington, D.C. I moved to D.C. to attend George Washington University, where I studied political communication. I now work in public affairs at a communications firm in D.C. Receiving My Diagnosis In December 2021, during my senior year of college, I […] March 26, 2025

Silent Monsters With virtually no symptoms except for one weekend of odd headaches nine months prior, silent monsters had been growing. I had just been on vacation climbing mountains, just built a house for my 2-year-old son, and just cycled around town on my bike. That Monday morning, I had just driven my son to daycare, just […] February 21, 2025

“Punching” Out Glioblastoma Through My Art My brother Emilio was my hero from the day I was born. Eleven years older than me, he was the best brother a sister could ask for — kind, generous, and deeply devoted to family. He was the picture of health, never even having a tooth cavity. So when he started feeling lethargic and obsessively […] February 18, 2025