Stories

Too soon June 2018, he just wasn’t himself. His actions became dangerous. When he was driving dangerously he was staring into space or talking to himself. In July we had to trick him to get him to the ER but we didn’t expect stage 4 GBM. The moment his tumor was discovered is etched in my brain […] July 26, 2021

13 Years… Glioblastoma took my fathers words, his ability to walk, to articulate his thoughts, and eventually his life. But before all that he had wonderful years after the diagnosis, years of driving, walking me down the aisle, getting married himself, seeing his grandchildren be born, the list goes on and on. He lasted almost 13 years […] July 7, 2021

In God’s Grace It was a a difficult time for me. In September I gave birth to my 3rd child. After that, my husband went to work abroad. Luckily, I had my daughter (9 years old) and son (5 years old) as they were my companions in my house. Symptoms included sleepless nights, tiredness, back pains, and slight […] July 7, 2021

My mom survived a brain tumor: Who’s your superhero? Like many families, my mom is my best friend. We share everything together – from our love for animals, kayaking, adventuring, and most importantly, running. My mom, Sue, and I have ran over 15 half marathons together and countless 10ks. In 2016, my mom was diagnosed with a “mass bigger than a golf ball” on […] June 11, 2021

My Story It will never happen to me. I always had that belief. It hit me hard when I suddenly got to know that I have hemangioblastoma and could not believe it as is never had any symptoms at all throughout my life. My biggest worry was about my 2 year old son. It became a bit […] June 11, 2021