News

Let’s Talk About DIPG and DMG Diffuse intrinsic pontine glioma (DIPG) gained notoriety in the 1960s when astronaut Neil Armstrong’s 2-year-old daughter passed away from the devastating disease seven years before her father’s infamous first steps on the moon. Despite advancements in medical research and treatment for other cancers over the past six decades, DIPG and diffuse midline glioma (DMG) survival […] September 17, 2024

Notes of Courage: Kai’s Childhood Cancer Story Eleven-year-old Kai C. sits down at his piano and masterfully plays his own composed song. The elementary student with an ear for music amazes his mother, Kari, as he improvises and creates pieces. With how effortlessly he moves over the keys, it might be hard to believe that Kai has experienced two recurrences, seven surgeries, […] August 26, 2024

Updated: Exciting News for Patients with Grade 2 Oligodendroglioma and Astrocytoma UPDATED (August 6, 2024): The U.S. Food and Drug Administration (FDA) has approved vorasidenib (brand name: Voranigo) for the treatment of adult and pediatric patients 12 years of age and older with grade 2 astrocytoma or oligodendroglioma with an IDH1 or IDH2 mutation, following surgery including biopsy, sub-total resection, or gross total resection. This is […] August 6, 2024

Distinguish Disease From Illness to Raise Awareness for GBM I was diagnosed with glioblastoma in June 2016 while completing the graduate requirements for my master’s degree in philosophy. When I say “completing,” I mean this literally. My spouse, Whitney, snapped pictures of me, donning my gown, sitting up in my hospital bed surrounded by notebooks, completing one of my final papers. The month-long stay […] July 17, 2024

Let’s Talk About Glioblastoma Glioblastoma (GBM) is known as one of the most common, complex, treatment-resistant, and deadliest cancers. These tumors devastate the brain, which controls cognition, mood, behavior, and personality, as well as every function of each organ and body part. The current standard of care can only prolong a patient’s life by a few months, on average, […] July 10, 2024