Sights & Sounds: Glioblastoma Awareness Day (#GBMDay) 2020 Perhaps Dr. Ned Sharpless, Director of the National Cancer Institute, summed up Glioblastoma (GBM) Awareness Day 2020 best when he said during NBTS’s Defeating GBM: A Virtual Town Hall event, “Events like this are really important to re-energize the community so we can join together and make progress in a disease that where progress has been […] July 23, 2020
The Rights of Brain Tumor Patients That Every Country Should Strive to Deliver On July 3, 2020, the National Brain Tumor Society (NBTS), along with more than 70 of our colleague organizations from across the international brain tumor community, welcomed the release of a new Brain Tumour Patients’ Charter of Rights. The document represents the perspective of brain tumor patients and caregivers and provides a set of standards […] July 7, 2020
Reflections on the Two-Year Anniversary of The Childhood Cancer STAR Act Two years ago, I stood in the Oval Office and watched as the Childhood Cancer STAR Act was signed into law. Observing this historic moment, I thought of the thousands of advocates, organizations, and children who worked tirelessly to support this legislation. From the first roundtable with the Alliance for Childhood Cancer, Coalition Against Childhood […] June 5, 2020
[RECAP] Brain Tumor Awareness Month 2020 Brain Tumor Awareness Month 2020 was bound to be a little different. The unprecedented nature of the COVID-19 public health crisis upended daily life for all Americans, including the brain tumor community, where the impact cut many ways. However, what we saw these past 31 days has been remarkable (if not completely unexpected). Despite many […] May 31, 2020
Sights & Sounds of Head to the Hill 2020 More than 1,300 brain tumor advocates flooded Congress with 4,567 messages asking for increased funding for brain tumor research National Brain Tumor Society’s Head to the Hill is the brain tumor community’s signature annual advocacy event. Normally, we unite with hundreds of volunteer brain tumor advocates — consisting of patients, survivors, caregivers, family, friends, clinicians, […] May 6, 2020