Key Questions

• What are the treatment options for brain tumor recurrence and are they different from the treatment for my original tumor?
• Are there any clinical trials for which I may be eligible?
• Who on my care team will be responsible for my follow-up care?

• What side effects should I expect from treatment and what can I do to manage them?
• When should I call you for immediate help?

• Is there a social worker on staff that can provide guidance and assistance?
• Where can I, my caregiver and family find mental health support services?
• Will I need rehabilitative services? If so, which ones and for how long?
• What if I don’t meet my rehabilitative goals before my benefits run out?
• Can you tell me about any financial support services, from either the hospital, company that produces my treatment, or local charities that my family and I can use to help with the cost of my treatment and other hardships we may be facing related to my brain tumor recurrence?
• Do you have any special rates for people paying out-of-pocket?
• Will I need long-term care service? Should I be planning financially for long-term medical care such as a nursing home or hospice?
• Who can help me understand Medicare and my state’s Medicaid rules for long-term care and my eligibility?

Can we discuss a plan for quality of life and palliative care?