Stories

Benign, Not Fine: My Journey Through Hearing Loss and Motherhood It was 7 months into my second pregnancy so I was familiar with the usual symptoms and aches and pains that carrying an almost full term baby will give you. However, this pregnancy felt different. I began experiencing new symptoms: Vertigo and dizziness, neck pain, and the worst of it all, I suddenly lost most […] July 7, 2025

Survived Past 5 Years After Grade 4 GBM I was diagnosed in March 2018 in Australia with grade 4 glioblastoma (GBM) at the age of 48.  After first surgery, I was given 18 months to live.  After that, I went to surgery with Prof Dr Charlie Teo on 23/5/18.  Then, he gave me 5 years. I’m still here to enjoy life. July 3, 2025

Karson Shane Ireland My son Karson was diagnosed with a posterior fossa ependymoma brain tumor on June 3, 2024. Getting that diagnosis changed our whole lives. He was having some symptoms before he got diagnosed. He was vomiting every morning about two weeks prior to his diagnosis, and he was also tilting his head to the side.  We […] July 3, 2025

My Journey…So Far! My name is Lydia. I’m 44. I went through an awful time before COVID, where I knew I didn’t feel right. I was back and forth to the doctors. Finally, they sent me to the hospital for an MRI, and they instantly told me they’d seen something on my scan. It was a tumour, and […] July 3, 2025

I’m Not Supposed to Be Here Today I’ve been using that line (borrowed from the 1994 film “Clerks”) as my mantra pretty much since diagnosis, as it helps to mitigate the initial shock that still reverberates to this day. To go from some headaches in the summer of 2024, which I attributed at the time to the lingering effects of a cold, […] July 3, 2025