News

New Grants Aim to Improve Quality of Life for Patients with Brain Tumors and Their Caregivers  Today, the National Brain Tumor Society (NBTS) is announcing its first-ever Quality of Life Research grants, part of a concerted new program aimed at improving the lives of those facing brain tumors, both patients and their caregivers. The new grants, supported in part by Stachestrong, will fund two projects, each for $200,000 over two years. […] March 17, 2025

Update from the Capital: Fiscal Year 2025 Funding Update The following is a brief, high-level update on the complicated and very fluid political situation unfolding around a possible government shutdown – and implications for federal funding of brain tumor research. Unless Congress acts, government funding will run out on Friday (March 14). The President recently called for Congress to pass a “Continuing Resolution (CR),” […] March 11, 2025

How Biomarker Testing Changed Everything for a Patient With Brainstem Glioma When Ben S-L. misjudged a corner and walked straight into a wall at work, he realized something wasn’t right. This incident, combined with his increasing headaches and a numb tongue, led Ben to see a neurologist and demand an MRI. Two weeks before turning 32, doctors diagnosed Ben with an inoperable high-grade brainstem glioma. Ben […] March 4, 2025

Benign is Not “Fine”: Common Misconceptions About Noncancerous Brain Tumors Each year, more than 67,000 Americans will be diagnosed with a benign (non-malignant) brain tumor. Often, when people hear the words “benign brain tumor,” their immediate reaction may be relief that “at least it’s not cancer,” assuming that a benign tumor means no severe symptoms and no lasting impact. But for those living with a […] February 19, 2025

Update from the Capital: Proposed NIH Policy At the end of January, we shared an update regarding a series of announcements from the new Administration and their potential implications for the brain tumor community.  NBTS’s primary concern continues to be whether any of these actions would limit the ability of the National Institutes of Health (NIH) and other federal agencies to provide […] February 14, 2025