Cultivating Connections: The Role Creative Expression Plays in the Brain Tumor Community Christina C. turned to writing poetry moments after receiving her grade 3 anaplastic astrocytoma diagnosis to try to process the whirlwind of emotions. This form of creative expression helped sustain her when she couldn’t sleep and as she underwent surgery, fertility preservation, and treatment. “While I was sitting in the emergency room on August 4, […] March 19, 2024
11 Ways to Find Community Through the National Brain Tumor Society Patients living with a brain tumor and their care partners often encounter isolation and loneliness throughout their brain tumor experience. In the wake of a diagnosis of a rare disease like a brain tumor, it may seem like no one understands what you’re facing. You can find community with others who truly understand and gain […] March 14, 2024
New Yorker Runs Marathon to Honor Dad Living with a Brain Tumor Nearly 60 runners, including Karen, represented the brain tumor community as members of the Gray Nation Endurance® (GNE) team as they raced 26.2 miles in the 2023 TCS NYC Marathon. Collectively, the team put meaning behind their miles and raised more than $363,000 for the National Brain Tumor Society. “The marathon was incredible,” Karen said. […] March 6, 2024
Brain Tumor Advocacy 101: Frequently Asked Questions National Brain Tumor Society’s volunteer advocacy efforts engage and mobilize approximately 20,000 people across the U.S. to advance public policies that affect brain tumor related research and the specialized health care needs for the one million patients and families living with a brain tumor diagnosis. Our voices are a powerful force for progress and change […] February 28, 2024
Seeking a Second Opinion Before Brain Surgery: What to Know Receiving a brain tumor diagnosis can be overwhelming and intimidating. The gravity of the situation and the complexity of treatment decisions can leave you feeling lost and uncertain. In such challenging circumstances, making well-informed decisions becomes paramount. One vital step to consider is seeking a second opinion before brain surgery when possible. “My second opinion […] February 26, 2024